Once, doctors looked at me with fear instead of answers. My parents were told my life would be fragile, limited—if it lasted at all. I grew up smaller than everyone else. Surrounded by machines, lingering stares, and questions no one ever asked out loud. For years, I wished I could fade into “normal,” to stop being the child everyone worried about. But at 22, everything changed. I finally understood this truth: my life was never broken—it was simply different. I don’t remember the day I was born

"أنا الأردني الوحيد الذي أصابني هذا المرض النادر"